The Lagos State Government has officially designated the third Saturday of September each year as Usher Syndrome Awareness Day.
Usher syndrome is a rare genetic disorder that causes both blindness and deafness. The declaration is part of the state’s commitment to inclusivity, ensuring that persons with disabilities are not left behind.
According to the PUNCH, a statement, by the Lagos State Office for Disability Affairs announced the new policy as part of Governor Babajide Sanwo-Olu’s THEMES+ developmental agenda, which prioritizes inclusivity.
During a meeting with individuals affected by Usher Syndrome, LASODA General Manager, Adenike Oyetunde-Lawal, highlighted the lack of awareness and genetic testing as major factors contributing to the disorder, especially in Africa and Asia.
“Millions of people globally suffer from Usher syndrome, with a larger incidence in developing nations due to ignorance and limited access to genetic counselling and testing,” Oyetunde-Lawal said.
She emphasized that although the disorder currently has no cure, preventive measures can be taken to reduce its occurrence.
Oyetunde-Lawal reiterated the state’s commitment to supporting individuals with disabilities, noting that LASODA fully supports the global initiative to raise awareness about Usher Syndrome.
Executive Director of the Lion Heart Foundation, Segun Okelola, praised Lagos for being the first state to recognize Usher Syndrome Awareness Day.
He described the move as a significant step in addressing the challenges faced by individuals with hearing and vision impairments.
Last year, the state government distributed hearing aids to nine primary school pupils, as part of its efforts to combat hearing loss among schoolchildren.
This initiative highlights the state’s ongoing commitment to improving the lives of persons with disabilities.
